Rare Disease Day: Quotes, Wishes, Messages, Images, Date, and More

Introduction of Rare Disease Day

There are millions of beings in the world population. Some are healthy, while some are suffering from diseases. However, there are two kinds of diseases affecting the population in the world; curable and non-curable. Curable conditions are those conditions whose origin, symptoms, effects, treatments and prevention are available in the medical research register. Non-curable ones are diseases whose appearance and effects are unknown to the field of medicine. Disease-specific communities, drug administration departments, research departments, and hospitals are in place to improve patients' lives. However, in the case of people with rare conditions, all medical departments work in collaboration towards medical innovations for a better life for the affected.

History of Rare Disease Day

The first Rare Disease Day was observed on 29th Feb 2008. February, a rare month with fluctuating days every four years, is dedicated to indicating rare diseases. Therefore, every year last day of February is celebrated as Rare disease day.

Rare Disease Day 2023 Date

• When is Rare Disease Day 2023?

Rare Disease Day for the year 2023 is celebrated/observed on Tuesday, 28 February.

• Rare Disease Day dates for the years 2022, 2023, 2024 and 2025

Rare Disease Day Quotes

• If you think too much about it, you won’t be able to do things that you can do in life. Wishing every fighter a very happy and gleeful Rare Disease Day.
• Share some of your trust to nature as well apart from medicines, while finding the cure. Wishing you the cure of all your painful things in life. Have a happy Rare Disease Day.
• Some Diseases are rare, but so is everything going perfectly all the time. So hold on to the treasured memories and live a happy life from this special affair of Rare Disease Day.
• You must try to do things that you love even if your disease is trying to obstruct you from doing so. Wishing you a happy Rare Disease Day.
• Get more involved in counting rare moments rather than just thinking about your rare disease. Wishing you a worriless life on the eve of Rare Disease Day.
• The voice of awareness shall be heard on this day of Rare Disease Day.
• You have to remember one thing, hope changes the way you live. Wishing and hopeful to see you happy for the entirety of your life on the eve of Happy Rare Disease Day.

Rare Disease Day Wishes

• The natural forces that are within us have the power to mend and heal diseases to some point. Wishing you all the power and have a happy Rare Disease Day.
• You can proudly admit that you know more about your disease than your own doctor. Wishing you a blissful Rare Disease Day.
• Normal is boring for you, but being amazing suits you more. Wishing a life full of amazing days on the eve of Rare Disease Day.
• You’ve always been unique but now you are rare. Have a wonderful Rare Disease Day.
• You are essential, and your fears are limiting your potential. Wishing you to reach your maximum potential of happiness in life on the day of Rare Disease Day.
• Be proud to show your stripes, you can make an impact on Rare Disease Day.
• Hope that the positivity within you shall always guide you to be happy. I hope you have wonderfully blissful years ahead of you.
• What you have is rare, but so is happiness. Better hold on to the later to feel alive every day. Wishing you the best of joy in life on this special Rare Disease Day.
• Together we are strong and mighty. No one can take that away from us. Wishing all the wonderful and special humans a very happy Rare Disease Day.
• The unification of beauty and purity is done by what’s rare in you. Hope to see you happy for the rest of your life. Have a happy Rare Disease Day.

Rare Disease Day Messages

• You must try to do things that you love even if your disease is trying to obstruct you from doing so. Wishing you a happy Rare Disease Day.
• Your immune system may be of question, but the sheer will to live a happy life shall never be in question. Wishing you all the best in life on this special day of Rare Disease Day.
• You have to remember one thing, hope changes the way you live. Wishing and hopeful to see you happy for the entirety of your life on the eve of Happy Rare Disease Day.
• Normal is boring for you, but being amazing suits you more. Wishing a life full of amazing days on the eve of Rare Disease Day.
• The disease you are bearing may be rare, however, your hope shouldn’t be. Wanting you all the joy on this Rare Disease Day.
• Excellent things are exceptionally difficult as they are extremely uncommon to discover. Desiring you all the best on this gorgeous Rare Disease Day.
• The natural forces that are within us have the power to mend and heal diseases to some point. Wishing you all the power and have a happy Rare Disease Day.
• The illness may be Rare, yet you have reached Roar. All the very best wishes to you on the eve of Rare Disease Day.
• Excellent things are extremely difficult as they are very rare to find. Wishing you all the best on this beautiful Rare Disease Day.
• Wishing you strength and happiness. Enjoy this Rare Disease Day with your friends and people like you.
• You need to understand a simple thing. You are not a burden; you have a burden which is too heavy to carry on your own. Wishing you a burden-free life on this Rare Disease Day.
• Be the beacon of inspiration for the people who are just like you. Provide courage via your toughness on this unique occasion of Rare Disease Day.
• Let’s hope that this particular day can bring more understanding into the minds of the oblivious. You should have to be satisfied with this unique Rare Disease Day.
• You can proudly confess that you recognize extra about your disease than your very own doctor. Wanting you a blissful Rare Disease Day.
• If you are trying already, then try harder to see past the tough times and gaze upon the good times that are waiting to happen. Wishing you a very happy Rare Disease Day.
• The voice of awareness shall be heard on this day of Rare Disease Day.
• Congratulations, you are not normal and so are many people. Let us all join hands and celebrate the Rare Disease Day together to raise more awareness.
• Congratulations you are helping the world unknowingly. Your rare disease will alert the researchers to find a cure. Wishing you nothing but prevention from pain on this day of Rare Disease Day.
• Celebrate this Rare Disease Day knowing you are not alone in this fight. Go out and meet each other and spend a day to remember.
• A rare disease shall never be in your way to achieve your dreams. Wishing you all the power and strength in life to achieve your goals on this special eve of Rare Disease Day.
• As a bearer of a rare disease, it is our responsibility to raise awareness for this special Day. Have a happy and wonderful Rare Disease Day ahead.
• A warm and happy regards to the people who haven’t stop enjoying in their life. Hope to see you joyful in your whole life. Have a wonderful Rare Disease Day.
• Be proud to show your stripes, you can make an impact on Rare Disease Day.
• Together we are strong and mighty. No one can take that away from us. Wishing all the wonderful and special humans a very happy Rare Disease Day.

Significance of Rare Disease Day

Rare disease day is celebrated to spread awareness to people about rare medical conditions which have no standard treatment and diagnosis. Over 300 million patients suffer from unique health hazards due to a lack of medical assistance and advanced conditions that developed due to emerging lifestyles and habits. It is also to convey our support to the affected individuals.

What is Considered Rare?

A disease that is unique and not in medical research is considered a rare disease. The rare diseases can take years to be diagnosed and may have limited or no treatments. The National Organization for Rare Disease Day(NORD) sponsors rare diseases across the world. It deals and thrives towards the support of individuals with rare conditions since 1987; NORD introduced programs that provide consultations, medications, financial and healthcare assistance with insurance premiums and co-pays.

Causes of Rare Disease

Most of the unique medical conditions are due to genetic disorders, genetic mutations, passing of defective genes to the next generation, and in a few cases, the disease appears for the first time in an individual. 

Role of National institutes of Health (NIH)

The National Institutes of Health contains many centres and institutes that are dedicated to the research and development of treatments for various illnesses. The National Center for Advancing Translational Sciences (NCATS), a part of NIH primarily focuses on developing cures and medical solutions to rare and common disease patients through collaborative research programs. Below are few of the programs taken up by NCATS.

1. Rare Diseases Clinical Research Network (RDCRN): This program aims to collaborate with multidisciplinary teams for performing academic and clinical research and contribute to the study and effects of nearly 200 rare diseases.
2. Therapeutics for Rare and Neglected Diseases (TRND): As the name suggests this program is an initiative for therapeutic research to develop treatments of rare diseases based on metabolic and biological traits of limited patients. Academic scientists, non-profit organizations, pharmaceutical & biotechnology companies work in collaboration to review biological effects and thereby create drugs at a faster pace as a cure.
3. Rare Diseases Registry Program (RaDaR): This is an online organization where reserves of information related to diagnosis, research, effects, conditions, medical guidance, testimonials are stored. The reservoir of information acts as a guiding light for the development and data centre of rare diseases. It also gathers the personal characteristics and consent of the patients for research.
4. Genetic and Rare Diseases Information Center (GARD): it was brought into existence by the NIH Office of Rare Disease Research in 2002. It is a part of NCATS. It assists the patients, caregivers, policymakers, researchers and public with detailed information about rare diseases. GARD is supported by National Human Genome Research Institute (NHGRI). The online database of GARD is considered a knowledge reservoir as it gathers information from authentic sources; the National Library of Medicine, scientific conferences, support groups, and clinical trials and research. GARD Team provide answers to patient queries both in English and Spanish languages.  

Challenging Life

Thirty million of the US population are affected by rare conditions. It is tough for the patient as well as the guardian as these diseases incur huge costs for medical tests and multiple consultations for diagnosis. Not to forget the transport and other travel-related expenses. Many times, the patient may even have side effects if the body does not accept drugs for treatment. Lack of progress exhaust the caregivers and patients’ energy, time and spirits.

These diseases mentally drain the energy of the patient as they are discriminated against and isolated due to social stigma. In addition, lack of knowledge about precautions interferes with the normal functioning of the body.

How are Affected People Treated?

Certified professionals separately treat affected systems if the rare condition is a combination of multiple systems disorders.

Example: Marfan syndrome, multiple organ systems are affected; heart, blood vessels, skeleton, eyes, lungs, and skin. In such cases, regular follow-ups are carried separately by an ophthalmologist for vision, orthopedician for a skeletomuscular, cardiologist for heart and neurologist for nervous system functions.

Scientists are in the continuous process of creating medicines for the health improvement of rare disease patients. They perform multiple experiments that lead to discovering medicines for unknown diseases and patient welfare. 

When is Rare Disease Day Celebrated?

Rare Disease Day is celebrated on the last day of February every year. It is an indication of the prevalence of unique and unidentified medical conditions in the world.

How is Rare Disease Day Celebrated?

Zebra with white stripes is considered a symbolic representation of uniqueness. Therefore, many display their support to patients and medical professionals by wearing striped shirts.  

Blue, green, pink and purple are considered as rare disease day colours, therefore one who loves to support patients, policymakers, health care professionals, guardians and researchers can light homes, buildings and monuments as a signal to help for welfare and discovery of medicine.

Apart from the above, social media posts, webinars, campaigns, fundraising events are carried across the globe on Rare disease day.

The Theme of Rare Disease Day for 2022

The theme of Rare Disease Day 2022 is Share your colours. The theme can be displayed by illuminating dwellings with the rare disease signifying colours. Wearing a striped shirt with a combination of blue, green, pink, purple is a creative way to show your support for the rare disease team.

Interesting Facts

1. Children occupy a higher proportion of rare disease individuals; it is also found that around 30% of them reach heaven before their 5th birthday.
2. A rare disease is seen in 1 out of 2000 people.
3. There is a risk of misdiagnosis and adverse effects of wrong medication in an affected person.
4. 72% of the rare conditions are due to mutations of chromosomes or defective genes
5. There are over 7000 rare medical conditions in the world. These are diverse in disorders also differ in affecting each patient. Also, around 250 treatments have been discovered, and approximate 95% of rare diseases have no standard treatment.
6. There are more than 500 types of cancers. Pediatric cancer is one of the rare cancers.
7. Sometimes a rare condition can only be present in one person, which becomes a challenge for the medical researchers and professionals for the development of drugs to improve the condition.